Stakeholders

Beacon (formerly known as Findacure) is a UK-based charity that is building a united rare disease community with patient groups at its heart. We envision a world in which no one faces their rare journey alone.

The mission of the BAD is to champion dermatology in the UK for the public benefit. This means developing educational content and courses, facilitating and publishing dermatology research, running dermatology registries, holding dermatology events and conferences, promoting innovation in dermatology care, and engaging with decision-makers and stakeholders within the dermatology community and wider health system.

GlobalSkin envisions a world in which people living with dermatological diseases and skin traumas can easily access the care and treatment they need, when they need it, and can live without stigmatization, persecution or economic disadvantages due to their conditions. GlobalSkin is working with over 200 patient association members ─ located in 67 countries representing more than 55 disease areas ─ to improve the lives of those affected by dermatological conditions throughout the world.

The International Pemphigus & Pemphigoid Foundation’s most important objectives are to provide patients and doctors worldwide with information about pemphigus and pemphigoid, and to provide patients and their caregivers much needed comfort and support so they can continue to live active, productive lives.

Medics 4 Rare Diseases is a registered charity driving an attitude change towards rare diseases amongst medical students and doctors in training.