Blog

PEM Friends would like to say: "A big THANK YOU to The British Association of Dermatologists (BAD) who supported a grant we submitted...

New Year Greetings 2025 is a special year for PEM Friends. It is 25 years since PEM Friends was launched and w e would like to celebrate...

The Bullous Pemphigoid patient journey output from the ePAGS (European Patient Advocacy Groups) is now available. This journey includes...

Take a look inside for patient stories, information about us and so much more. Our Magazine always takes alot of work by lots of people....

Rob Frankow and his team competed in the Big Clays event (Virtual Clay Shooting) on Wednesday 23rd October. They Won A Prize! Pem Friends...

We're proud media partners attending RAREfest24 by @camraredisease on 22nd and 23rd Nov in Cambridge, Will you join us? Did you know...

After almost 25 years with PEM Friends, PEM Council are sad to announce that Isobel Davies is stepping down as the chair of PEM Friends...

Congratulations to the wonderful Mark Ranson-Thompson who completed the Big Half in a fantastic time of 2hrs 47minutes and 10seconds. You...

Mark is running the Big Half (half marathon) on Sunday 1st September 2024. Training is going really well. Please donate if you can. Mark...

DO YOU HAVE MARKETING COMMUNICATIONS SKILLS? If so, PEM Friends needs you Our second objective, after supporting people with pemphigus or...

Trina entered a painting in the Fondation René Touraine’s Rare Skin Diseases Network art contest The contest is run to raise public...

PEM Friends attended their 3rd BAD Annual meeting in Manchester on 2nd to 4th July  and it was another great success. These meetings are...

Day 2 and The Manchester Central is a terrific Venue. British Association of Dermatology Annual Meeting in Manchester. The old Manchester...

Day 1 and you can see how close we are to the entrance to the hall (just to the left). Fabulous! British Association of Dermatology...

We are setting up PSG stand No.15 ready for tomorrow. Come and say hello if you can. British Association of Dermatology Annual Meeting in...

This week we are attending the British Association of Dermatology Annual Meeting in Manchester. If you are there come and visit us at PSG...

The latest edition of PEM Lives is available

PEM Friends is now is registered charity

My attendance at the Beacon Drug Repurposing for Rare Diseases Conference on Monday 10th October was well worth the very early start....