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GlobalSkin 2025 Conference: Day 2
"Stop hiding, start living!" On Friday Trina attended Day 2 of the GlobalSkin Conference in Prague. Here is her report: Day 2: Start at...

Ingrid Thompson
8 hours ago2 min read
35 views


GlobalSkin 2025 Conference: Day 1
Today Trina attended Day 1 of the GlobalSkin conference in Prague Here is her report: Day 1: A very early start. 53 countries represented...

Ingrid Thompson
1 day ago1 min read
65 views


GlobalSkin 2025 Conference
This week our chairperson Trina is attending the GlobalSkin conference which is being held in Prague. Watch this space for daily updates.

Ingrid Thompson
2 days ago1 min read
21 views


It's PEM Friends Silver Jubilee Year
We're 25 Years Old With 2025 being our silver jubilee year, PEM Friends invites you to join us in celebrating all that’s been achieved...

Ingrid Thompson
Apr 121 min read
36 views


Survey by The British Skin Foundation and the Skin Health Alliance
Please note that this survey is for UK residents only Click here The British Skin Foundation and the Skin Health Alliance have teamed...

Ingrid Thompson
Mar 111 min read
61 views


In Search of Scar Prevention for Patients with Ocular Pemphigoid: "The MMP Oral Disulfiram Study"
A talk given over Zoom by Prof. Saaeha Rauz and her team is now available Still Recruiting Professor Saaeha Rauz and her team from the...

Ingrid Thompson
Mar 41 min read
64 views


February 28th is Rare Disease Day
PEM Friends is gearing up for Rare Disease Day. Are you? Pemphigus and Pemphigoid are rare dermatological diseases. As a community, we...

Ingrid Thompson
Feb 181 min read
18 views


A Big Thank You to Scott
Scott with the presentation cheque showing the donation to PEM Friends PEM Friends has been given the terrific sum of £5400 from Scott...

Ingrid Thompson
Feb 52 min read
26 views


Managing Pemphigus and Pemphigoid from a Nursing Aspect
A talk given over Zoom by Nurse Molly Connolly on 31/10/2024 Molly Connolly from the British Dermatology Nursing Group (BDNG) got in...

Ingrid Thompson
Jan 271 min read
66 views


A big THANK YOU to The British Association of Dermatologists (BAD)
PEM Friends would like to say: "A big THANK YOU to The British Association of Dermatologists (BAD) who supported a grant we submitted...

Ingrid Thompson
Jan 131 min read
36 views


Best Wishes For The New Year
New Year Greetings 2025 is a special year for PEM Friends. It is 25 years since PEM Friends was launched and w e would like to celebrate...

Ingrid Thompson
Jan 11 min read
9 views



Ingrid Thompson
Dec 18, 20240 min read
6 views


The latest PEM patient journey is now available.
The Bullous Pemphigoid patient journey output from the ePAGS (European Patient Advocacy Groups) is now available. This journey includes...

Ingrid Thompson
Nov 27, 20241 min read
203 views


The December edition of PEM Lives Magazine is out NOW
Take a look inside for patient stories, information about us and so much more. Our Magazine always takes alot of work by lots of people....

Ingrid Thompson
Nov 12, 20241 min read
99 views


PEM Friend Rob wins a Prize
Rob Frankow and his team competed in the Big Clays event (Virtual Clay Shooting) on Wednesday 23rd October. They Won A Prize! Pem Friends...

Ingrid Thompson
Nov 5, 20241 min read
40 views


RAREfest24: A Unique Festival Making Rare Disease an Everyday Conversation
We're proud media partners attending RAREfest24 by @camraredisease on 22nd and 23rd Nov in Cambridge, Will you join us? Did you know...

Ingrid Thompson
Oct 16, 20243 min read
46 views


Isobel Steps Down After 25 Years
After almost 25 years with PEM Friends, PEM Council are sad to announce that Isobel Davies is stepping down as the chair of PEM Friends...

Ingrid Thompson
Sep 8, 20241 min read
76 views


Well Done Mark and Thank You from PEM Friends
Congratulations to the wonderful Mark Ranson-Thompson who completed the Big Half in a fantastic time of 2hrs 47minutes and 10seconds. You...

Ingrid Thompson
Sep 2, 20241 min read
84 views


Mark is Running to Raise Money for PEM Friends. 1st September. Please donate now. It all goes to PEM Friends!
Mark is running the Big Half (half marathon) on Sunday 1st September 2024. Training is going really well. Please donate if you can. Mark...

Ingrid Thompson
Aug 29, 20241 min read
97 views


PEM Friends needs you
DO YOU HAVE MARKETING COMMUNICATIONS SKILLS? If so, PEM Friends needs you Our second objective, after supporting people with pemphigus or...

Ingrid Thompson
Aug 20, 20241 min read
15 views
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