Blog

A new story for the New Year and this one is all about our attendance at various conferences over the years. Conferences Over the Years by Trina Harris #25yearsofPEMFriends

Just in Time for Christmas. Take a look now. A Festive Edition of our Magazine As we celebrate the Christmas season, we’re delighted to share the Christmas edition of PEM Lives, refreshed once again with a new A5 format. This thoughtful update not only gives the magazine a more modern and accessible style, but also makes it easier to post while helping keep postage costs down, allowing us to continue reaching as many people as possible. Inside, you’ll find research updates, p

Time for another story and this one highlights the work that many of us do with other organisations. Working With The British Association of Dermatologists by Isobel Davies #25yearsofPEMFriends

Story 13 is by our Treasurer John. Now we are a charity this is such an important job! Proper Financial Reporting by John Kendrick #25yearsofPEMFriends

In story 12 Julie (our Facebook Group manager) tells us how the Covid pandemic prompted our Thursday Lunchtime Zoom sessions. An opportunity to talk face to face with others all over the country. Zoom Sessions by Julie Martin #25yearsofPEMFriends

Trina's Video Trina shares her experience of living with pemphigus vulgaris – from the life-threatening challenges of airways blistering to the emotional toll of her condition. She reflects on the experiences of others with pemphigoid and pemphigus, and highlights the importance of clear communication and joined-up care in helping patients feel supported and understood. Click here to view her video

Here is story No. 11. and PEM Friends raised their profile with this one. ELPFDD & THE IPPF - PEM Friends Takes Part in Groundbreaking FDA Meeting #25yearsofPEMFriends

Another story by our chairperson Trina is now here and it's story No.10 The Little Things That Mattered Most by Trina Harris #25yearsofPEMFriends

The story's are coming thick and fast now. Here is the latest and it's Story NO.9 Your PEM Journal – Your Companion on the Journey by Julie Berger Martin #25yearsofPEMFriends

Here is the latest in our anniversary stories. Story No.8 on our 25th Anniversary Page Becoming a PEM Friend by Melanie Hunt We have plenty more stories to come so keep checking in #25yearsofPEMFriends

Here is another one. Story No.7 on our 25th Anniversary Page The Story of PEM Lives: From One Page to a Lifeline by Trina Harris Our next story will follow soon #25yearsofPEMFriends

It's here. Story No.6 on our 25th Anniversary Page Regional Meetings by Helen Robinson and Trina Harris Look out for our next story soon....

It's here. Story No.5 on our 25th Anniversary Page A New Website by Ingrid Thompson Our next story will follow soon #25yearsofPEMFriends

Welcome to the New Look PEM Lives! Take a look inside A New Look For 25 Years of PEM Friends We’re excited to share with you the latest edition of PEM Lives—now refreshed with a brand-new format and style! This updated version has been thoughtfully redesigned to better reflect the vibrant, diverse, and inspiring PEM Friends we’re so proud to be part of. Inside, you’ll find the same heartfelt stories, helpful updates, and community news you’ve come to expect, but now presented

It's here. Story No.4 on our 25th Anniversary Page Sponsored Runs by Mark Ranson-Thompson Look out for our next story #25yearsofPEMFriends

Trina and John On Thursday July 3rd Trina and John attended Day 3 of the British Association of Dermatology Annual Meeting Here is...

Hazel, Scott and Trina are ready to go On Wednesday July 2nd Trina, Scott and Hazel attended Day 2 of the British Association of...

Trina is Ready On Tuesday July 1st Trina attended Day 1 of the British Association of Dermatology Annual Meeting Here is her report: Day...

This week we are attending the  British Association of Dermatology Annual Meeting Come and meet us on Stand PSG18 We are there for all 3...

It's here. Story No.3 on our 25th Anniversary Page Creating the (Diagnostic) Photo Library by Dr Andy Heath Look out for our next story...