Blog

RAREfest24: A Unique Festival Making Rare Disease an Everyday Conversation

We're proud media partners attending RAREfest24 by @camraredisease on 22nd and 23rd Nov in Cambridge, Will you join us? Did you know...

Ingrid Thompson

Oct 16, 20243 min read

Isobel Steps Down After 25 Years

After almost 25 years with PEM Friends, PEM Council are sad to announce that Isobel Davies is stepping down as the chair of PEM Friends...

Ingrid Thompson

Sep 8, 20241 min read

Well Done Mark and Thank You from PEM Friends

Congratulations to the wonderful Mark Ranson-Thompson who completed the Big Half in a fantastic time of 2hrs 47minutes and 10seconds. You...

Ingrid Thompson

Sep 2, 20241 min read

Mark is Running to Raise Money for PEM Friends. 1st September. Please donate now. It all goes to PEM Friends!

Mark is running the Big Half (half marathon) on Sunday 1st September 2024. Training is going really well. Please donate if you can. Mark...

Ingrid Thompson

Aug 29, 20241 min read

PEM Friends needs you

DO YOU HAVE MARKETING COMMUNICATIONS SKILLS? If so, PEM Friends needs you Our second objective, after supporting people with pemphigus or...

Ingrid Thompson

Aug 20, 20241 min read

Trina's Painting is Given 2nd Prize

Trina entered a painting in the Fondation René Touraine’s Rare Skin Diseases Network art contest The contest is run to raise public...

Ingrid Thompson

Aug 1, 20241 min read

PEM Friends attends the 104th annual meeting of the British Association of Dermatologists which was held in Manchester

PEM Friends attended their 3rd BAD Annual meeting in Manchester on 2nd to 4th July and it was another great success. These meetings are...

Isobel Davies

Jul 9, 20243 min read

The 104th BAD Annual Meeting

Day 2 and The Manchester Central is a terrific Venue. British Association of...

Ingrid Thompson

Jul 3, 20241 min read

The 104th BAD Annual Meeting

Day 1 and you can see how close we are to the entrance to the hall (just to the left). Fabulous! British Association of Dermatology...

Ingrid Thompson

Jul 2, 20241 min read

The 104th BAD Annual Meeting

We are setting up PSG stand No.15 ready for tomorrow. Come and say hello if you can. British Association of Dermatology Annual Meeting in...

Ingrid Thompson

Jul 1, 20241 min read

The 104th BAD Annual Meeting

This week we are attending the British Association of Dermatology Annual Meeting in Manchester. If you are there come and visit us at...

Ingrid Thompson

Jun 24, 20241 min read

June edition of PEM Lives is out

The latest edition of PEM Lives is available

Andy Heath

Jun 3, 20241 min read

PEM Friends gets charitable status!

PEM Friends is now is registered charity

Andy Heath

Mar 1, 20241 min read

Beacon Drug for Rare Diseases Drug Repurposing Conference 2022

My attendance at the Beacon Drug Repurposing for Rare Diseases Conference on Monday 10th October was well worth the very early start....

Isobel Davies

Oct 17, 20222 min read

4 days in Milan (EADV Congress 2022)

PEM Friends has attended the European Dermatology and Venereology Annual Congress 3 times now. Twice in person and once virtually. We...

Isobel Davies

Oct 5, 20224 min read

PEM Friends visit Glasgow

BRITISH ASSOCIATION OF DERMATOLOGY ANNUAL MEETING GLASGOW 5TH - 7TH JULY 2022 PEM Friends attended the conference as a Patient Support...

Isobel Davies

Jul 19, 20223 min read

My life with Mucous Membrane Pemphigoid - A journey to supporting others through PEM Friends

This blog post is a reproduction of an article by Isobel Davies published in the Primary Care Dermatology Society's Summer 2022 Bulletin.

Isobel Davies

May 20, 20225 min read

A Day in the Life - Rosemary's Day

Living with Bullous Pemphigoid. Rosemary's day

Rosemary

Feb 28, 20222 min read

A Day in the Life - Julie's Story

Julie is in remission from PV but that doesn't mean cured!

Julie Martin

Feb 28, 20221 min read

A Day in the Life - Helen's Day

A day in the life of Helen who suffers from PF

Helen

Feb 27, 20221 min read